Wednesday, August 6, 2008

A little prayer request !!!!

As I mentioned in my post (things you don't know about me), I have a sister who has Prader-Willi syndrome. She is very overweight, has diabetes, congestive heart failure, etc. because of this disease. She is also borderline mentally retarded.
She had to be taken to the ER yesterday because of low blood oxygen levels. They kept her for observation overnight.
She has now taken a turn for the worse, and they have put her in ICU and are discussing putting her on a ventilator.

Now we have been through this over and over for the past 5 years, but something just seems worse this time. She was on a vent 2 years ago for 14 days and they did not think she would come off.
If you could all please just say a little prayer for her and my family. Not sure how much more my parents can take. Her name is Stevie Glass

I just feel so bad for her....Stevie is 25, but mentally is still a child and she hates to be alone.....I wish they would let me or my mom stay with her - but they did not last time, so I guess they won't this time either. Maybe she will be out of there soon. Hopefully they are giving her something to help her rest and she is sleeping a lot.

Will try to keep updating here.....we are supposed to leave for the beach tomorrow (Bear and I), but not sure if we will still go or is only 3.5 hours away, but I hate to leave my mom....Of course she says "go on and go....we will be fine"....I just have not decided what to do.

Here is a picture of Stevie and Rio at the show last week - she loves my horses....and they love her too.

Update: 4:45pm.....Just got a call from mom.....they are putting her on the ventilator now. Well hopefully she will sleep well from the meds. I will see her in the morning and update.
Update: 1:25pm (Thurs)
Just got back from the hospital. She is pretty much sedated but knew we were there, she squeezed my hand when I asked her if she could hear me.
They said she has pneumonia but they have her on antibiotics, also she has a lot of fluid on her lungs and heart. They have her on IV lasiks, and she is getting rid of a lot quickly.
Her dioxide is at 52 now instead of 107 - which is great.
Also dr said they have her on minimal ventilator, and will be trying to wake her up and wean her off of it completely.
Dr also said she is doing good, and making great progress.....
Thanks for all the prayers - they are working

Will update when I can - but it might be Monday.


Mrs Mom said...

Jamie--- Fight with them!! If she hates to be alone, POINT THAT OUT!!!! Dont give up--- if YOU FEEL that she needs you or Mom there-- then MAKE THEM LISTEN!! I am betting that you are a lot like me in that respect-- when a loved one needs you, you are right there and will fight to the death for them. So listen to your gut, and you badger the hell out of those ICU Docs until one of you can be WITH her!

Will be praying for you all....keep us posted when you can girl.

ForUsThreeGirls said...

Praying for you all!
Please keep us posted.

The Wife said...

Just came your blog. I will keep you in our prayers.

Trail Riding Cowgirl said...

You and your family are in our prayers here in the midwest. When my mom was dying in ICU I planted myself and refused to leave her side. If you want to stay then do it!


Train Wreck said...

Oh J! I am so sorry!What difficult time this must be for you and your family! You can most definatley count on prayers from me! I hope she is comfortable, and gets some restful sleep! Let us know how she is doing. Be strong my friend!Keeping you your family and your sister tucked under my prayer pillow! My heart is with you!

Twinville said...

Stupid diseases! I wish there were NONE! :(
I hope your sister conquers this bad bout of infection and illness quickly and gets stronger soon.

What an awful ordeal for everyone. Hang in there.

Bless the horses. They can be such good therapy for ALL humans.

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